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Trigeminal Neuralgia National
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39.2 KB 1) This is Brian Nelson in Houston, TX. This pain slide show is to comfort you a little when you regrettably found that you have something that no one else you know has. There is very little support and you are trying to find out what to do with your facial pain. (2) Yes, Yes, Yes, You have just discovered that you have a very bad case of "Facial Pain!" (3)Suddenly from out of no where you have an single hit of a extreme, sporadic, burning or shock-like pain in your face that lasts from a few seconds to as long as 2 minutes. Darn' Darn, Darn, ................ that is bad news. What is going on in my head? Maybe it is just a one time thing. Just try to forget about it. (4) Then it happens again. The pain is always on the same side of your face but it does move around. Yesterday it was up by my eye. Today it is down by my jaw. It just won't make up it's mind where it really wants to be. (5) The intensity of pain can be physically and mentally incapacitating. (6) Often they tell you "It is all you your head... " You're crazy" ... Your friends and loved ones remind you that you have been to Doctor after Doctor. All the Doctors say the same thing. "I don't see anything here. " Your friends and loved ones are all trying to being supportive and positive saying you are just fine. A lot of good that does. (7) They may say " There is nothing there. Get over it. Get on with your life." Yah sure..... but no one really seems to understand your pain. They think you are making it up to get attention or get out of doing some thing you are supposed to do or they just think you are just super depressed. (8) Well folks.... the truth of the matter is - when you continue to get super electrical pain that no one else understands it is not just a little depressing... but it is VERY depressing! (9) Episodes can last for days, weeks, or months at a time and then disappear for months or even years. Then your friends say "See........ what I told you. It was just temporarily in your head.'' (10) bAnd then sometime later ...... Oh oh, Oh No......It is back. Darn. It could be back a few months or even a few years later but the important thing is that you feared and dreaded this problem that you know only too well and it is back. You don't know why or how long it will hang around but it has returned from nowhere. Now your have to tell your friends again that it is back. They will analyze your every move and try to relate it to some stressful event that is going on in your life and blame that. (11) Your friends think you are getting depressed again and easily will help you find an excuse about the way you are living which only helps for you to get more depressed again. Only you know how bad these recurring pains returning really are. It is like a bad birthday gift from the devil himself. (12)You are viewed by your loved ones as having another sign of depression. You are having a bad week. "Get over it" they say and get on with your life. But this is my life. Why am I stuck with all this hidden pain. I want to find the cause but I can not find anyone who can fix this problem. (13)But only you know deep down in your heart or in your head you are getting pain without any real cause. It sure would be nice to have a normal quiet day. (14)Face pain is not a problem that always fits into those neat boxes. Patients often do not really care a whole lot about what label their pain is given. They know that they hurt and they just want to get rid of the pain. (15)The attacks often seem to worsen over time, with fewer and shorter pain-free periods before they recur. The intense flashes of pain can be triggered by vibration or contact with the cheek such as when shaving, washing the face, applying makeup, brushing your teeth, eating, drinking, talking, or just being exposed to the wind. (16) Wow!!!!! This is getting serious. (17) Finally ...................someone really helps you come up with a name for this hidden pain. Yes - By Golly it does have a name. It is called "Trigeminal Neuralgia" Viola!!!! You learn that it has it's own nickname. Sometimes they call it TN or tic douloureux. Whatever it is, it is no cake walk for you or your supporters. What you really know is that this has definitely changed your life in a big way. You would like to have your old life back - to feel normal and have this burning desire to be with your friends and loved ones without them asking. "How are you? You really look fine to me." But little by little they are steering away from you knowing that you are more interested in getting rid of your pain they you are in helping them propel their goals in life. (18) Ok - so now you have it...... Trigeminal Neuralgia. It just maybe that you are not alone. You have compassionate companionship. (19)You gradually learn that if you have "Trigeminal Neuralgia" it is very rare. OH how great? You always wanted to have a medical problem that is so rare that most doctors have never even heard about it. So how are they going to fix it. Oh yes. Practice, Practice, Practice. That is what the call their medical profession, a medical practice. Wouldn't it be nice to see a Doctors business card that said "Expert Body Repair. No job is too big or too small. " Only 1 in 25,000 people have this - so who knows how to fix it?. Most people don't know anyone who has it. (20)The reason the doctors couldn't find a solution or even identify your problem is because they only have maybe 800 - 1800 patients. So the odds of them learning about TN are very small. (21) Then you learn that most likely your pain is cause by something messing with your Trigeminal Nerve. That is the nerve leads from your brain to 3 parts of your face on either the left or the right side and goes directly to the brain. So how do you explore around inside your head without messing your head up. It is not going to be easy. (22) TN occurs most often in people over age 50, but it can occur at any age. It is a little more common in women than in men. (23) But that doesn't leave anyone off the hook including the very small children or growing teenagers. 24There is some evidence that the disorder runs in families, perhaps because of an inherited pattern of blood vessel formation. Although sometimes debilitating, the disorder is not life-threatening unless you consider the high risks of suicide caused by depression and a lack of hope. (25) The presumed cause of many TN cases is a blood vessel pressing on the trigeminal nerve in the brain as it exits the brainstem. (26) TN could be a tiny bit a part of the normal aging process but in some cases it is the associated with another disorder, such as multiple sclerosis, a tumor, a tragic accident that affected your head or other disorders characterized by damage to the myelin sheath that covers certain nerves. (27) Is there any hope? Yes! Of course there is hope. The problem is you have to find exactly where within your head the source of the pain is originating. That is a major problem (28) Because there are a large number of conditions that can cause your facial pain, the cause of the TN can be difficult to diagnose. But finding the cause of the pain is important as the treatments for various types of pain are not be the same. (29)Treatment options include medicines such as anticonvulsants and tricyclic antidepressants, surgery, and complementary approaches. Typical analgesics and opioids are not usually helpful in treating the sharp, recurring pain caused by TN. Some drugs often prescribed are Carbamazepine (Tegretol, Carbatrol), Baclofen. Dilantin, and Trileptal. Surgery can include Alcohol injection. Glycerol injection, Balloon compression, Electric current, Microvascular decompression (MVD). Severing the nerve. Radiation, Gamma-Knife or radio surgery (30) If medication fails to relieve pain or produces intolerable side effects such as excess fatigue, surgical treatment may be recommended. Several neurosurgical procedures are available. Some are done on an outpatient basis, while others are more complex and require hospitalization. (31) Some patients choose to manage TN using complementary techniques, usually in combination with drug treatment. These techniques include acupuncture, biofeedback, vitamin therapy, nutritional therapy, and electrical stimulation of the nerves. (32) What is the prognosis? The disorder is characterized by recurrences and remissions, and successive recurrences which may be incapacitating. It is a very serious disorder. (33) Due to the intensity of the pain, even the fear of an impending attack may prevent normal living activity. Trigeminal neuralgia is not fatal. Therefore TN it is not treated by the research community as if it were terminal resulting in very little research money. But for TN patients the pain is there. Unless you have had sporadic facial pain you can't really understand what a TN patient is going through. (34) If you have just one more ray of hope or have found one friend who has a similar pain problem because of TN Education then that is a great sign of progress. They can understand how you feel. You can understand how they feel. Support group meetings can be of great benefit to many to TN patients and a wonderful learning tool to get around the medical community. (35) Is there hope in finding the cause of your pain? Absolutely Yes..... of course there is. It is not easy but the more we meet and discuss Trigeminal Neuralgia the more we learn on how to treat it. (36) There has been some research which has helped discover some new things. The way we can discover more to help everyone is to have a lot more research. It costs a lot of money. Because TN is not a fatal disorder it is hard to get research money. (37) What can you do to help yourself when you or a loved one has TN? (38) Talk to as many TN patients as you can by phone, in person or by e-mail. (39) Get everyone's e-mail addresses Attend the TN Support group meetings in your area. (40) Pray daily or more often. It is free and who can help you better than the one who created you. Pray often. It helps. (41) Keep a pain journal on the internet. Others from around the world who may have a problem similar to yours will send you e-mails and you may get a few tips on what new things you can try. (42) Read the book " Striking Back" The Trigeminal Neuralgia Handbook. by George Weigel and Kenneth F. Casey, MD . (43) Read the book "Working in a Very Small Place" by Mark Shelton. (44) Read the book " Insights- Facts and Stores behind Trigeminal Neuralgia. By Joanna M. Sakrezewska, M.D. (45) Highlight or underline meaningful statements or sections of the books as you read the articles. Later this will be valuable because you will have a new way of looking at your pain as time moves forward (46) The problem with this debilitating disease is that no 2 people experience the pain in the same exact way. Search the internet for a case very similar to yours. Read journals, blogs and view videos on www.Youtube.com (47) Everyone is different because of their body chemistry. But. there are many similarities. You have to become the success campaign chairman for your own case. Others can not see your pain or do it for you. When you keep a journal on your pain you will be able to look up what happened to you previously. You will be amazed at how things have changed as well as how many things you will forget. (48) You will repress some of the pain thoughts you experience but it could be very valuable to know exactly what happened to you previously and when it happened. (49) It is normal to creatively forget some bad moments. You know in the back of your mind that they were there. Hanging on mentally to many bad moments serves so little purpose one can easily put them in the " I will forget about that" column because you know there is nothing you can do about the past. When you post it in your journal it is there if you need to refer to it. (50) Remember the TNA motto: " Together We Will End The Pain." (51) Go to the website. www.MyTrigeminalNeuralgiaStory.com (52) You can E-mail comments to me at: Brian@NelsonIdeas.com |
((1) This is Brian Nelson in Houston, TX. This pain slide show is to comfort
you a little when you regrettably found that you have something that no one
else you know has. There is very little support and you are trying to find out
what to do with your facial pain. (2) Yes, Yes, Yes, You have just discovered that you have a very bad case of "Facial Pain!" (3)Suddenly from out of no where you have an single hit of a extreme, sporadic, burning or shock-like pain in your face that lasts from a few seconds to as long as 2 minutes. Darn' Darn, Darn, ................ that is bad news. What is going on in my head? Maybe it is just a one time thing. Just try to forget about it. (4) Then it happens again. The pain is always on the same side of your face but it does move around. Yesterday it was up by my eye. Today it is down by my jaw. It just won’t make up it’s mind where it really wants to be. (5) The intensity of pain can be physically and mentally incapacitating. (6) Often they tell you "It is all you your head….. “ You’re crazy” ……… Your friends and loved ones remind you that you have been to Doctor after Doctor. All the Doctors say the same thing. "I don't see anything here. " Your friends and loved ones are all trying to being supportive and positive saying you are just fine. A lot of good that does. (7) They may say " There is nothing there. Get over it. Get on with your life." Yah sure…………. but no one really seems to understand your pain. They think you are making it up to get attention or get out of doing some thing you are supposed to do or they just think you are just super depressed. (8) Well folks…….. the truth of the matter is - when you continue to get super electrical pain that no one else understands it is not just a little depressing... but it is VERY depressing! (9) Episodes can last for days, weeks, or months at a time and then disappear for months or even years. Then your friends say “See........ what I told you. It was just temporarily in your head.’’ (10) bAnd then sometime later ...... Oh oh, Oh No......It is back. Darn. It could be back a few months or even a few years later but the important thing is that you feared and dreaded this problem that you know only too well and it is back. You don’t know why or how long it will hang around but it has returned from nowhere. Now your have to tell your friends again that it is back. They will analyze your every move and try to relate it to some stressful event that is going on in your life and blame that. (11) Your friends think you are getting depressed again and easily will help you find an excuse about the way you are living which only helps for you to get more depressed again. Only you know how bad these recurring pains returning really are. It is like a bad birthday gift from the devil himself. (12)You are viewed by your loved ones as having another sign of depression. You are having a bad week. "Get over it" they say and get on with your life. But this is my life. Why am I stuck with all this hidden pain. I want to find the cause but I can not find anyone who can fix this problem. (13)But only you know deep down in your heart or in your head you are getting pain without any real cause. It sure would be nice to have a normal quiet day. (14)Face pain is not a problem that always fits into those neat boxes. Patients often do not really care a whole lot about what label their pain is given. They know that they hurt and they just want to get rid of the pain. (15)The attacks often seem to worsen over time, with fewer and shorter pain-free periods before they recur. The intense flashes of pain can be triggered by vibration or contact with the cheek such as when shaving, washing the face, applying makeup, brushing your teeth, eating, drinking, talking, or just being exposed to the wind. (16) Wow!!!!! This is getting serious. (17) Finally ...................someone really helps you come up with a name for this hidden pain. Yes - By Golly it does have a name. It is called "Trigeminal Neuralgia" Viola!!!! You learn that it has it's own nickname. Sometimes they call it TN or tic douloureux. Whatever it is, it is no cake walk for you or your supporters. What you really know is that this has definitely changed your life in a big way. You would like to have your old life back - to feel normal and have this burning desire to be with your friends and loved ones without them asking. "How are you? You really look fine to me." But little by little they are steering away from you knowing that you are more interested in getting rid of your pain they you are in helping them propel their goals in life. (18) Ok - so now you have it...... Trigeminal Neuralgia. It just maybe that you are not alone. You have compassionate companionship. (19)You gradually learn that if you have "Trigeminal Neuralgia" it is very rare. OH how great? You always wanted to have a medical problem that is so rare that most doctors have never even heard about it. So how are they going to fix it. Oh yes. Practice, Practice, Practice. That is what the call their medical profession, a medical practice. Wouldn't it be nice to see a Doctors business card that said "Expert Body Repair. No job is too big or too small. " Only 1 in 25,000 people have this - so who knows how to fix it?. Most people don't know anyone who has it. (20)The reason the doctors couldn’t find a solution or even identify your problem is because they only have maybe 800 - 1800 patients. So the odds of them learning about TN are very small. (21) Then you learn that most likely your pain is cause by something messing with your Trigeminal Nerve. That is the nerve leads from your brain to 3 parts of your face on either the left or the right side and goes directly to the brain. So how do you explore around inside your head without messing your head up. It is not going to be easy. (22) TN occurs most often in people over age 50, but it can occur at any age. It is a little more common in women than in men. (23) But that doesn’t leave anyone off the hook including the very small children or growing teenagers. 24There is some evidence that the disorder runs in families, perhaps because of an inherited pattern of blood vessel formation. Although sometimes debilitating, the disorder is not life-threatening unless you consider the high risks of suicide caused by depression and a lack of hope. (25) The presumed cause of many TN cases is a blood vessel pressing on the trigeminal nerve in the brain as it exits the brainstem. (26) TN could be a tiny bit a part of the normal aging process but in some cases it is the associated with another disorder, such as multiple sclerosis, a tumor, a tragic accident that affected your head or other disorders characterized by damage to the myelin sheath that covers certain nerves. (27) Is there any hope? Yes! Of course there is hope. The problem is you have to find exactly where within your head the source of the pain is originating. That is a major problem (28) Because there are a large number of conditions that can cause your facial pain, the cause of the TN can be difficult to diagnose. But finding the cause of the pain is important as the treatments for various types of pain are not be the same. (29)Treatment options include medicines such as anticonvulsants and tricyclic antidepressants, surgery, and complementary approaches. Typical analgesics and opioids are not usually helpful in treating the sharp, recurring pain caused by TN. Some drugs often prescribed are Carbamazepine (Tegretol, Carbatrol), Baclofen. Dilantin, and Trileptal. Surgery can include Alcohol injection. Glycerol injection, Balloon compression, Electric current, Microvascular decompression (MVD). Severing the nerve. Radiation, Gamma-Knife or radio surgery (30) If medication fails to relieve pain or produces intolerable side effects such as excess fatigue, surgical treatment may be recommended. Several neurosurgical procedures are available. Some are done on an outpatient basis, while others are more complex and require hospitalization. (31) Some patients choose to manage TN using complementary techniques, usually in combination with drug treatment. These techniques include acupuncture, biofeedback, vitamin therapy, nutritional therapy, and electrical stimulation of the nerves. (32) What is the prognosis? The disorder is characterized by recurrences and remissions, and successive recurrences which may be incapacitating. It is a very serious disorder. (33) Due to the intensity of the pain, even the fear of an impending attack may prevent normal living activity. Trigeminal neuralgia is not fatal. Therefore TN it is not treated by the research community as if it were terminal resulting in very little research money. But for TN patients the pain is there. Unless you have had sporadic facial pain you can’t really understand what a TN patient is going through. (34) If you have just one more ray of hope or have found one friend who has a similar pain problem because of TN Education then that is a great sign of progress. They can understand how you feel. You can understand how they feel. Support group meetings can be of great benefit to many to TN patients and a wonderful learning tool to get around the medical community. (35) Is there hope in finding the cause of your pain? Absolutely Yes..... of course there is. It is not easy but the more we meet and discuss Trigeminal Neuralgia the more we learn on how to treat it. (36) There has been some research which has helped discover some new things. The way we can discover more to help everyone is to have a lot more research. It costs a lot of money. Because TN is not a fatal disorder it is hard to get research money. (37) What can you do to help yourself when you or a loved one has TN? (38) Talk to as many TN patients as you can by phone, in person or by e-mail. (39) Get everyone's e-mail addresses Attend the TN Support group meetings in your area. (40) Pray daily or more often. It is free and who can help you better than the one who created you. Pray often. It helps. (41) Keep a pain journal on the internet. Others from around the world who may have a problem similar to yours will send you e-mails and you may get a few tips on what new things you can try. (42) Read the book “ Striking Back” The Trigeminal Neuralgia Handbook. by George Weigel and Kenneth F. Casey, MD . (43) Read the book "Working in a Very Small Place" by Mark Shelton. (44) Read the book “ Insights- Facts and Stores behind Trigeminal Neuralgia. By Joanna M. Sakrezewska, M.D. (45) Highlight or underline meaningful statements or sections of the books as you read the articles. Later this will be valuable because you will have a new way of looking at your pain as time moves forward (46) The problem with this debilitating disease is that no 2 people experience the pain in the same exact way. Search the internet for a case very similar to yours. Read journals, blogs and view videos on www.Youtube.com (47) Everyone is different because of their body chemistry. But… there are many similarities. You have to become the success campaign chairman for your own case. Others can not see your pain or do it for you. When you keep a journal on your pain you will be able to look up what happened to you previously. You will be amazed at how things have changed as well as how many things you will forget. (48) You will repress some of the pain thoughts you experience but it could be very valuable to know exactly what happened to you previously and when it happened. (49) It is normal to creatively forget some bad moments. You know in the back of your mind that they were there. Hanging on mentally to many bad moments serves so little purpose one can easily put them in the “ I will forget about that” column because you know there is nothing you can do about the past. When you post it in your journal it is there if you need to refer to it. (50) Remember the TNA motto: “ Together We Will End The Pain.” (51) Go to the website. www.MyTrigeminalNeuralgiaStory.com (52) You can E-mail comments to me at: Brian@NelsonIdeas.com |
| 1 | (Audio Track.) This is Brian Nelson in Houston, TX. This pain slide show is to comfort you a little when you regrettably found that you have something that no one else you know has. There is very little support and you are trying to find out what to do with your facial pain. |
| 2 | Yes, Yes, Yes, You have just discovered that you have a very bad case of "Facial Pain!" |
| 3 | Suddenly from out of no where you have an single hit of a extreme, sporadic, burning or shock-like pain in your face that lasts from a few seconds to as long as 2 minutes. Darn' Darn, Darn, ................ that is bad news. What is going on in my head? Maybe it is just a one time thing. Just try to forget about it. |
| 4 | Then it happens again. The pain is always on the same side of your face but it does move around. Yesterday it was up by my eye. Today it is down by my jaw. It just won’t make up it’s mind where it really wants to be. |
| 5 | The intensity of pain can be physically and mentally incapacitating. |
| 6 | Often they tell you "It is all you your head….. “ You’re crazy” ……… Your friends and loved ones remind you that you have been to Doctor after Doctor. All the Doctors say the same thing. "I don't see anything here. " Your friends and loved ones are all trying to being supportive and positive saying you are just fine. A lot of good that does. |
| 7 | They may say " There is nothing there. Get over it. Get on with your life." Yah sure…………. but no one really seems to understand your pain. They think you are making it up to get attention or get out of doing some thing you are supposed to do or they just think you are just super depressed. |
| 8 | Well folks…….. the truth of the matter is - when you continue to get super electrical pain that no one else understands it is not just a little depressing... but it is VERY depressing! |
| 9 | Episodes can last for days, weeks, or months at a time and then disappear for months or even years. Then your friends say “See........ what I told you. It was just temporarily in your head.’’ |
| 10 | And then sometime later ...... Oh oh, Oh No......It is back. Darn. It could be back a few months or even a few years later but the important thing is that you feared and dreaded this problem that you know only too well and it is back. You don’t know why or how long it will hang around but it has returned from nowhere. Now your have to tell your friends again that it is back. They will analyze your every move and try to relate it to some stressful event that is going on in your life and blame that. |
| 11 | Your friends think you are getting depressed again and easily will help you find an excuse about the way you are living which only helps for you to get more depressed again. Only you know how bad these recurring pains returning really are. It is like a bad birthday gift from the devil himself. |
| 12 | You are viewed by your loved ones as having another sign of depression. You are having a bad week. "Get over it" they say and get on with your life. But this is my life. Why am I stuck with all this hidden pain. I want to find the cause but I can not find anyone who can fix this problem. |
| 13 | But only you know deep down in your heart or in your head you are getting pain without any real cause. It sure would be nice to have a normal quiet day. |
| 14 | Face pain is not a problem that always fits into those neat boxes. Patients often do not really care a whole lot about what label their pain is given. They know that they hurt and they just want to get rid of the pain. |
| 15 | The attacks often seem to worsen over time, with fewer and shorter pain-free periods before they recur. The intense flashes of pain can be triggered by vibration or contact with the cheek such as when shaving, washing the face, applying makeup, brushing your teeth, eating, drinking, talking, or just being exposed to the wind. |
| 16 | Wow!!!!! This is getting serious. |
| 17 | Finally ...................someone really helps you come up with a name for this hidden pain. Yes - By Golly it does have a name. It is called "Trigeminal Neuralgia" Viola!!!! You learn that it has it's own nickname. Sometimes they call it TN or tic douloureux. Whatever it is, it is no cake walk for you or your supporters. What you really know is that this has definitely changed your life in a big way. You would like to have your old life back - to feel normal and have this burning desire to be with your friends and loved ones without them asking. "How are you? You really look fine to me." But little by little they are steering away from you knowing that you are more interested in getting rid of your pain they you are in helping them propel their goals in life. |
| 18 | Ok - so now you have it...... Trigeminal Neuralgia. It just maybe that you are not alone. You have compassionate companionship. |
| 19 | You gradually learn that if you have "Trigeminal Neuralgia" it is very rare. OH how great? You always wanted to have a medical problem that is so rare that most doctors have never even heard about it. So how are they going to fix it. Oh yes. Practice, Practice, Practice. That is what the call their medical profession, a medical practice. Wouldn't it be nice to see a Doctors business card that said "Expert Body Repair. No job is too big or too small. " Only 1 in 25,000 people have this - so who knows how to fix it?. Most people don't know anyone who has it. |
| 20 | The reason the doctors couldn’t find a solution or even identify your problem is because they only have maybe 800 - 1800 patients. So the odds of them learning about TN are very small. |
| 21 | Then you learn that most likely your pain is cause by something messing with your Trigeminal Nerve. That is the nerve leads from your brain to 3 parts of your face on either the left or the right side and goes directly to the brain. So how do you explore around inside your head without messing your head up. It is not going to be easy. |
| 22 | TN occurs most often in people over age 50, but it can occur at any age. It is a little more common in women than in men. |
| 23 | But that doesn’t leave anyone off the hook including the very small children or growing teenagers. |
| 24 | There is some evidence that the disorder runs in families, perhaps because of an inherited pattern of blood vessel formation. Although sometimes debilitating, the disorder is not life-threatening unless you consider the high risks of suicide caused by depression and a lack of hope. |
| 25 | The presumed cause of many TN cases is a blood vessel pressing on the trigeminal nerve in the brain as it exits the brainstem. |
| 26 | TN could be a tiny bit a part of the normal aging process but in some cases it is the associated with another disorder, such as multiple sclerosis, a tumor, a tragic accident that affected your head or other disorders characterized by damage to the myelin sheath that covers certain nerves. |
| 27 | Is there any hope? Yes! Of course there is hope. The problem is you have to find exactly where within your head the source of the pain is originating. That is a major problem |
| 28 | Because there are a large number of conditions that can cause your facial pain, the cause of the TN can be difficult to diagnose. But finding the cause of the pain is important as the treatments for various types of pain are not be the same. |
| 29 |
Treatment options include medicines such as anticonvulsants and
tricyclic antidepressants, surgery, and complementary approaches. Typical
analgesics and opioids are not usually helpful in treating the sharp,
recurring pain caused by TN. Some drugs often prescribed are
Carbamazepine (Tegretol, Carbatrol),
Baclofen.
Dilantin, and
Trileptal.
Surgery can include
Alcohol injection.
Glycerol injection,
Balloon compression,
Electric current,
Microvascular decompression (MVD).
Severing the nerve.
Radiation, Gamma-Knife or radio surgery
|
| 30 | If medication fails to relieve pain or produces intolerable side effects such as excess fatigue, surgical treatment may be recommended. Several neurosurgical procedures are available. Some are done on an outpatient basis, while others are more complex and require hospitalization. |
| 31 | Some patients choose to manage TN using complementary techniques, usually in combination with drug treatment. These techniques include acupuncture, biofeedback, vitamin therapy, nutritional therapy, and electrical stimulation of the nerves. |
| 32 |
What is the
prognosis? The disorder is characterized by recurrences and remissions, and successive recurrences which may be incapacitating. It is a very serious disorder. |
| 33 | Due to the intensity of the pain, even the fear of an impending attack may prevent normal living activity. Trigeminal neuralgia is not fatal. Therefore TN it is not treated by the research community as if it were terminal resulting in very little research money. But for TN patients the pain is there. Unless you have had sporadic facial pain you can’t really understand what a TN patient is going through. |
| 34 | If you have just one more ray of hope or have found one friend who has a similar pain problem because of TN Education then that is a great sign of progress. They can understand how you feel. You can understand how they feel. Support group meetings can be of great benefit to many to TN patients and a wonderful learning tool to get around the medical community. |
| 35 | Is there hope in finding the cause of your pain? Absolutely Yes..... of course there is. It is not easy but the more we meet and discuss Trigeminal Neuralgia the more we learn on how to treat it. |
| 36 | There has been some research which has helped discover some new things. The way we can discover more to help everyone is to have a lot more research. It costs a lot of money. Because TN is not a fatal disorder it is hard to get research money. |
| 37 | What can you do to help yourself when you or a loved one has TN? |
| 38 | Talk to as many TN patients as you can by phone, in person or by e-mail. |
| 39 | Get everyone's e-mail addresses Attend the TN Support group meetings in your area. |
| 40 | Pray Daily or more often. It is free and who can help you better than the one who created you. Pray often. It helps. |
| 41 | Keep a pain journal on the internet. Others from around the world who may have a problem similar to yours will send you e-mails and you may get a few tips on what new things you can try. |
| 42 | Read the book “ Striking Back” The Trigeminal Neuralgia Handbook. by George Weigel and Kenneth F. Casey, MD . " |
| 43 | Read the book "Working in a Very Small Place" by Mark Shelton. |
| 44 | Read the book “ Insights- Facts and Stores behind Trigeminal Neuralgia. By Joanna M. Sakrezewska, M.D. |
| 45 | Highlight or underline meaningful statements or sections of the books as you read the articles. Later this will be valuable because you will have a new way of looking at your pain as time moves forward |
| 46 | The problem with this debilitating disease is that no 2 people experience the pain in the same exact way. Search the internet for a case very similar to yours. Read journals, blogs and view videos on www.Youtube.com |
| 47 | Everyone is different because of their body chemistry. But… there are many similarities. You have to become the success campaign chairman for your own case. Others can not see your pain or do it for you. When you keep a journal on your pain you will be able to look up what happened to you previously. You will be amazed at how things have changed as well as how many things you will forget. |
| 48 | You will repress some of the pain thoughts you experience but it could be very valuable to know exactly what happened to you previously and when it happened. |
| 49 | It is normal to creatively forget some bad moments. You know in the back of your mind that they were there. Hanging on mentally to many bad moments serves so little purpose one can easily put them in the “ I will forget about that” column because you know there is nothing you can do about the past. When you post it in your journal it is there if you need to refer to it. |
| 50 |
Remember the TNA motto: “ Together We Will End The Pain.” |
| 51 |
Go to the website. www.MyTrigeminalNeuralgiaStory.com |
| 52 |
You can E-mail comments to: Brian Nelson Click: E-mail me Brian@NelsonIdeas.com |
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